We've started seeing a lymphedema massage therapist for Keeghan's lymphedema. Keeghan, is not so thrilled with this. The idea of some stranger touching her in a medical like setting isn't one that goes over well. We've ended up having her show us the massage on us and trying it on Keeghan. Keeghan will let us massage her a bit here and there. We certainly don't expect her to lay still for an hour as is typical in this treatment so we get in some massage after bathtime and when we're getting her dressed. I'll also do some if she's sitting on my lap quietly. I'm sure she'll get used to it and better at sitting still for it as we go along. The next step in the process is bandaging. Both Doug and I were under the impression bandaging was part of maintenance of the swelling reduction but have come to find out that's not the case. So the other day we got out some of the bandaging supplies at Keeghan's appointment (we're there 3 times a week for an hour each visit). Yeah, THAT did not go well. Keeghan saw the bottom layer of wrap and flipped out. I finally got it on her arm and she left it there for a bit but that was as far as we got. There are 3 other layers that need to go on. We're hoping to find a glove to use for her hand and fingers which would eliminate a layer that is used on her fingers but we aren't sure if they come small enough. We tried again yesterday with some bandaging...and didn't get much further. It's just going to take time and patience (cause I'm SUCH a patient person) to get her used to it. We're going to try her leg tomorrow as she seemed more amenable to that than her arm. We'll see.
We also had an early intervention evaluation last week and Keeghan will be getting some help with her speech. I knew she was behind on that and was hoping we could get her to qualify for services to get some help catching her up. I'm pretty sure it won't take long but it's certainly not something I'm qualified to do so help is a good thing! I'm waiting to hear back on when we'll start once a week visits for that. So that will make three times a week at therapy and once a week with EI at our house. Simply because I have all kinds of spare time...
I'm kidding there...soccer season is getting underway and we'll have practice 4 nights a week along with games on weekends. This week is particularly crazy in that it's Carson's birthday tomorrow and Doug is going to see two concerts (same band...two nights) and Devon is doing a battle of the bands with some guys he met and formed a band with...oh and we're moving kids bedrooms around which means I'm painting. Couple all that with the fact that I've got some kind of crazy cold (and possible a sinus infection at this point) and it's going to make for a long week. Good thing Sunday is Easter and we can hang out at home.
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